Angelman Syndrome Foundation makes a significant impact with $195 million raised since 1999

ASF Walk contributes to improved lives for individuals and families affected by rare neuro-genetic disorder

Mission-driven organization raises awareness, provides support and advocates for treatment advancements

The Angelman Syndrome Foundation (ASF) has reached a remarkable milestone of raising $195 million since its inception in 1999. These funds have had a profound impact on the lives of those affected by Angelman syndrome (AS), a rare neuro-genetic disorder that affects one in 15,000 live births worldwide.

AS is characterized by developmental delays, motor issues, and a lack of speech and language. The ASF's mission is to advance the awareness and treatment of AS through education, information, and research. The foundation's work has contributed significantly to improving the quality of life for individuals with AS and their families.

The ASF Walk is the organization's largest annual fundraising event. Over the past 23 years, the walk has raised millions of dollars to support AS research, programs, and services. The funds raised have helped to advance research into genetic testing, therapies, and interventions to improve the lives of individuals with AS.

In addition to funding research, the ASF also provides vital support and resources to families affected by AS. The foundation offers educational materials, support groups, and financial assistance to help families navigate the challenges of caring for a child with AS.

The ASF's mission is to continue to raise awareness of AS and advocate for treatment advancements. With the support of donors and volunteers, the foundation is making a significant impact on the lives of those affected by this rare disorder.